Anxious, excited, worried and so much more

Well, it's official..... my Dad (and brother) are driving my Mom and I to Calgary tomorrow afternoon, as we have an early flight on Monday morning and didn't want to be getting up at 4 am!!!!
These past few days have been a bag of mixed emotions for me,  and to be honest I just don't know how I'm "feeling" right now. Don't get me wrong, I am definitely excited for this trip, but I"m also scared, nervous and anxious! I want some answers for all the unanswered questions I have, I want to be "fixed". I know I cannot be cured of my NF, but I just want relief of some of the symptoms! But in the same breath, I am so excited to get answers and I will be happy if they tell me my headaches (and other symptoms) are not able to be cured or fixed. What I mean by this is this trip is almost like closure in some way, because we are going to the top doctors who are educated thuroughly on NF (and that's a change!) I am actually so nervous/excited/anxious that I only slept 5 hours last night..... EEK!
This morning the Mayo Clinic called my house to confirm that we were still coming on the 17th. They informed me that I will have 3 appointments on Tuesday, 2 on Wednesday and 3 on Thursday! I can't believe that in the first 3 days I will have seen seven doctors already (I still don't know which doctor I an seeing on which day, so I'll keep you guys posted).
Lastly, I want to thank everyone who has been there for both me and my family in the past few weeks. All of your words of encouragement have meant a lot to me.
I"ll write another post once I get to Rochester, but for now I hope everyone has a great day!!!!

2 More Weeks!

So two weeks from now, I'll be leaving with my Mom to go to the Mayo Clinic! I'm definitely getting more nervous as the date approaches for my first appointment, but I'm also getting more and more excited! We fly out on the 17th (of July), and my first appointment is on the 19th. I'll be seeing a geneticist who specializes in NF, and from there we will have all of our other appointments, tests, scans etc booked.
I'm supposed to see a neurologist, endocrinologist (hormone doctor), orthopedic surgeon, urologist, gynecologist, geneticist and a general practitioner.
We're all crossing our fingers that we'll find some kind of answer to my headaches and other health issues, and if there are no answers, we're just looking for some kind of closure!

I'm looking forward to keeping this blog, and I hope you all will enjoy it!

The Mayo Clinic!

I am super excited to be going to the Mayo Clinic this summer in Rochester Minnesota. There, I will be seeing 7 specialists about various problems I have encountered with NF. My family and I are all hoping that there is something that the doctors down there can do to help me. There is no cure for NF, but there are various treatments that can be used to treat any problems associated with NF.
This blog is intened to keep family and friends informed about what is going on while I am in the USA, and I hope that people find it useful in keeping them updated!