Anxious, excited, worried and so much more

Well, it's official..... my Dad (and brother) are driving my Mom and I to Calgary tomorrow afternoon, as we have an early flight on Monday morning and didn't want to be getting up at 4 am!!!!
These past few days have been a bag of mixed emotions for me,  and to be honest I just don't know how I'm "feeling" right now. Don't get me wrong, I am definitely excited for this trip, but I"m also scared, nervous and anxious! I want some answers for all the unanswered questions I have, I want to be "fixed". I know I cannot be cured of my NF, but I just want relief of some of the symptoms! But in the same breath, I am so excited to get answers and I will be happy if they tell me my headaches (and other symptoms) are not able to be cured or fixed. What I mean by this is this trip is almost like closure in some way, because we are going to the top doctors who are educated thuroughly on NF (and that's a change!) I am actually so nervous/excited/anxious that I only slept 5 hours last night..... EEK!
This morning the Mayo Clinic called my house to confirm that we were still coming on the 17th. They informed me that I will have 3 appointments on Tuesday, 2 on Wednesday and 3 on Thursday! I can't believe that in the first 3 days I will have seen seven doctors already (I still don't know which doctor I an seeing on which day, so I'll keep you guys posted).
Lastly, I want to thank everyone who has been there for both me and my family in the past few weeks. All of your words of encouragement have meant a lot to me.
I"ll write another post once I get to Rochester, but for now I hope everyone has a great day!!!!

Wow!

I just can't believe that I am going to be leaving in a weeks time! I am so excited to finally be going to Rochester Minnesota (after much planning and anticipation!)

I will try and keep this blog updated as much as I can. If and when there are days that I'm not well enough to blog, I will get my Mom to do some posts for me! Hopefully I won't need her to do it though! Also, once I know some sort of  "schedule" for which doctor I will see on which day, when I'm getting tests/scans/blood work etc I'll make sure to post it for you guys!

I want to thank everyone for being there for me not only in the past few months, but in the past few years as well. Because of some very special people (you know who you are), I have finally accepted  NF as part of me, and I no longer want to hide it. I used to be so afraid that people would think I was some sort of "freak" and once they figured out I had this disorder, they wouldn't want to be friends with me anymore. I know that might sound cheesy, but high school can be a mean place. I've seen kids get pushed around because of their "differences". Now, I KNOW that my NF makes me who I am, and its allowed me to grow up to be the person that I am. I want to be able to help sick kids, and I also wanting to raise more awareness for NF. Most of you have probably never even heard of Neurofibromatosis until you met me, and I want to be the one to change that. Someday, NF WILL be a commonly known disorder!!!

2 More Weeks!

So two weeks from now, I'll be leaving with my Mom to go to the Mayo Clinic! I'm definitely getting more nervous as the date approaches for my first appointment, but I'm also getting more and more excited! We fly out on the 17th (of July), and my first appointment is on the 19th. I'll be seeing a geneticist who specializes in NF, and from there we will have all of our other appointments, tests, scans etc booked.
I'm supposed to see a neurologist, endocrinologist (hormone doctor), orthopedic surgeon, urologist, gynecologist, geneticist and a general practitioner.
We're all crossing our fingers that we'll find some kind of answer to my headaches and other health issues, and if there are no answers, we're just looking for some kind of closure!

I'm looking forward to keeping this blog, and I hope you all will enjoy it!