Wow!

I just can't believe that I am going to be leaving in a weeks time! I am so excited to finally be going to Rochester Minnesota (after much planning and anticipation!)

I will try and keep this blog updated as much as I can. If and when there are days that I'm not well enough to blog, I will get my Mom to do some posts for me! Hopefully I won't need her to do it though! Also, once I know some sort of  "schedule" for which doctor I will see on which day, when I'm getting tests/scans/blood work etc I'll make sure to post it for you guys!

I want to thank everyone for being there for me not only in the past few months, but in the past few years as well. Because of some very special people (you know who you are), I have finally accepted  NF as part of me, and I no longer want to hide it. I used to be so afraid that people would think I was some sort of "freak" and once they figured out I had this disorder, they wouldn't want to be friends with me anymore. I know that might sound cheesy, but high school can be a mean place. I've seen kids get pushed around because of their "differences". Now, I KNOW that my NF makes me who I am, and its allowed me to grow up to be the person that I am. I want to be able to help sick kids, and I also wanting to raise more awareness for NF. Most of you have probably never even heard of Neurofibromatosis until you met me, and I want to be the one to change that. Someday, NF WILL be a commonly known disorder!!!

The Mayo Clinic!

I am super excited to be going to the Mayo Clinic this summer in Rochester Minnesota. There, I will be seeing 7 specialists about various problems I have encountered with NF. My family and I are all hoping that there is something that the doctors down there can do to help me. There is no cure for NF, but there are various treatments that can be used to treat any problems associated with NF.
This blog is intened to keep family and friends informed about what is going on while I am in the USA, and I hope that people find it useful in keeping them updated!